May Mallahzadeh ⏤ 2024

May Mallahzadeh ⏤ 2024

Future steps

This page outlines the next phases and actions foreseen for this study.

We have to figure out ways of creating a program that educates patients and trains people and prepares them to participate in research. To learn how to partner with others, how to collaborate. All the way to how to bring their voice, how to help others and how to represent the voice of other patients.

Amy Price, Researcher

Involve more providers and researchers to gain their perspectives on the provotype, ensuring a comprehensive understanding of its impact and potential improvements.

Expanding Perspectives

The second phase of the study was initially intended to be a co-design process. However, due to time constraints and recruitment challenges, it was changed to a survey based on the data collected during the first phase. The study has received IRB approval for the next stage, which will involve co-designing to redesign the provotype more effectively to meet people's needs.

Redesign the provotype collaboratively with participants

to better represent their needs.

Exploring design research potentials

This study aimed to conduct exploratory research alongside evidence-based research to assess its value. Patients accepted and recognized its importance. How else can this approach be implemented, and which stakeholders should be involved?

One of the challenges faced was the unwillingness of researchers and providers to participate in the research, particularly in the second phase of the research. What if, based on the provotype's results from the patients, we could encourage key stakeholders in the healthcare system and researchers to initiate a dialogue about patient needs and how to involve them more effectively in the healthcare system in the future?

Provoke healthcare providers, policy makers, and researchers

If the prototypes were to be launched, the first feature introduced should be the 'Research Study,' as people seem to feel a significant gap in this area and believe they need it more than the story feature. Additionally, it would have a web app base accessible through personal computers as well.

Next Steps for the Provotype